<script data-pm-proxy="intercept"></script><?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0" xmlns:itunes="http://www.itunes.com/dtds/podcast-1.0.dtd" xmlns:googleplay="http://www.google.com/schemas/play-podcasts/1.0"><channel><title><![CDATA[A Death Doula's Substack]]></title><description><![CDATA[Learn how to reduce fears and anxiety about death and dying with expert knowledge, helpful tips, planning tools, humor, and grace. An experienced death doula/educator helps you achieve a better death someday...and a better life right now.]]></description><link>https://catherinedurkinrobinson.substack.com</link><image><url>https://substackcdn.com/image/fetch/$s_!fbCF!,w_256,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdaf0fbaa-a71b-4ab5-aa3d-bb4e61e9a00d_1280x1280.png</url><title>A Death Doula&apos;s Substack</title><link>https://catherinedurkinrobinson.substack.com</link></image><generator>Substack</generator><lastBuildDate>Fri, 04 Sep 2026 16:11:05 GMT</lastBuildDate><atom:link href="/__u/catherinedurkinrobinson.substack.com/feed" rel="self" type="application/rss+xml"/><copyright><![CDATA[Catherine Durkin Robinson]]></copyright><language><![CDATA[en]]></language><webMaster><![CDATA[catherinedurkinrobinson@substack.com]]></webMaster><itunes:owner><itunes:email><![CDATA[catherinedurkinrobinson@substack.com]]></itunes:email><itunes:name><![CDATA[Catherine Durkin Robinson]]></itunes:name></itunes:owner><itunes:author><![CDATA[Catherine Durkin Robinson]]></itunes:author><googleplay:owner><![CDATA[catherinedurkinrobinson@substack.com]]></googleplay:owner><googleplay:email><![CDATA[catherinedurkinrobinson@substack.com]]></googleplay:email><googleplay:author><![CDATA[Catherine Durkin Robinson]]></googleplay:author><itunes:block><![CDATA[Yes]]></itunes:block><item><title><![CDATA[The Five Gates of Grief]]></title><description><![CDATA[Understanding the many ways that loss affects our lives.]]></description><link>https://catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 03 Sep 2026 11:03:34 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!1IHU!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Grief hits us with a bang doesn&#8217;t it? I notice it as I&#8217;m walking through a grocery store, while listening to an old playlist, or when I wake up in the middle of the night for a glass of water. And when that happens, most of us have no clear understanding of how to navigate through it.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!1IHU!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_1456, 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!1IHU!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F96ca9a17-1620-4388-8c5f-56c4a7a9ad57_3888x2592.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>We&#8217;re handed a few platitudes (&#8220;time heals,&#8221; &#8220;they&#8217;re in a better place&#8221;) and left to figure it out for ourselves. Psychotherapist Francis Weller offers us an interesting framework, called the Five Gates of Grief.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>In Weller&#8217;s 2015 book <em>The Wild Edge of Sorrow,</em> he differentiates his Five Gates from K&#252;bler-Ross&#8217;s famous five stages of dying. They&#8217;re better understood as doorways, he insists. Distinct rooms of sorrow that a person might enter at different points in life, sometimes more than once, sometimes several at the same time. (To be fair, that sounds a lot like what K&#252;bler-Ross described in her stages; it&#8217;s just been misinterpreted over the years.)*</p><p>Here are Weller&#8217;s five gates&#8230;</p><h3>The First Gate</h3><p>Everything we love, we will lose. This is where we go with common grief: the death of a loved one, a diagnosis or divorce, the loss of a job or a home. Those aches that bring us to tears or to our knees.</p><h3>The Second Gate</h3><p>What about the parts of us that have not known love? This gate is harder to find and has everything we&#8217;ve hidden: old secrets, childhood wounds, the pieces of our identity we were taught to feel ashamed of.</p><h3>The Third Gate</h3><p>The sorrows of the world live here. We feel grief that extends beyond us: wars, genocides, fascism, ecological collapse, injustice, and the suffering of strangers. Weller argues that most of us carry far more of this grief than we admit, and that suppressing it leads to numbness and disengagement from the world.</p><h3>The Fourth Gate</h3><p>What we expected, but did not receive. This gate holds the grief of absence: the love, protection, or validation we desperately needed once, and may still. It&#8217;s often harder to process this type of loss because there&#8217;s no ritual or funeral service for something that didn&#8217;t happen.</p><h3>The Fifth Gate</h3><p>This is a space for ancestral grief. Sorrow passed down through generations: mourned or unmourned losses, traumas, and unlived dreams of the family and lineage we were born into and carried forward often without our consent or conscious awareness.</p><h2>Weller&#8217;s Framework</h2><p>I&#8217;m doing a lot of summarizing here. Francis Weller studied grief rituals in indigenous and pre-industrial cultures for decades, where elders wove communal mourning into the fabric of everyday life. He witnessed or participated in healing through drumming, wailing, ash ceremonies, and more.</p><p>His central claim is that our modern European-centered culture has lost these communal structures. Too many people grieve in isolation, which he believes contributes to a host of mental health issues, including depression, addiction, and a broader cultural numbness.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>In <em>The Wild Edge of Sorrow</em>, Weller positions grief work as a sacred and necessary practice, rather than a secret to be handled privately. It requires a community witness.</p><h2>Different Kinds of Loss</h2><p>I think part of its power is that this framework widens what counts as &#8220;real&#8221; grief. Someone mourning a miscarriage, a friendship that ended, or an accident that leaves them vulnerable often feels like their loss isn&#8217;t real. It doesn&#8217;t qualify as grief the way a death of a loved one counts.</p><p>The Five Gates challenges that notion.</p><p>A layoff could land in the fourth gate (the career you worked so hard for but didn&#8217;t get) as much as the first. A person who put their parents on &#8220;no contact&#8221; may find their grief mostly in the second and fourth gates (the love that wasn&#8217;t there) rather than the first. Climate anxiety or grief over a school shooting halfway across the country fits into the ever-growing third gate.</p><p>By categorizing five distinct doorways instead of one generic grouping called &#8220;grief,&#8221; the model gives us all permission to put some names to what we&#8217;re feeling.</p><h2>Across Cultures and Faiths</h2><p>Weller draws heavily on ritual traditions from West African and other indigenous grief practices. He&#8217;s explicit that grief needs a communal container and this makes the gates naturally adaptable, since most faith and cultural traditions already have their own architecture for mourning.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/the-five-gates-of-grief?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>Careseekers can easily bring these rituals within the gates.</p><p>In my Jewish tradition, sitting shiva creates communal space that holds first- and fifth-gate grief at the same time. Personal loss with generational memory. Buddhist teachings on impermanence speak directly to the first gate&#8217;s premise that everything we love, we will lose. Practices of loving-kindness toward one&#8217;s own suffering echo the second gate&#8217;s call to tend to disowned pain. Many Latin American communities&#8217; D&#237;a de los Muertos traditions offer built-in rituals for the fifth gate. Practitioners actively invite ancestors into an ongoing relationship rather than treating their loss as finished business. Christian traditions of lament (psalms, vigils, wakes) offer language for the third and fourth gates, giving voice to sorrow over social justice or unmet needs.</p><p>The gates themselves don&#8217;t require any particular doctrine to be useful. I appreciate them as a helpful description of the human experience rather than a theology. What changes across all of our cultures or traditions are the specific singing, fasting, storytelling, or gestures. What doesn&#8217;t change is the healing we all feel or the grace we receive in relationship with each other.</p><h2>Living With the Gates</h2><p>These Five Gates aren&#8217;t a checklist on my to-do list. Just something helpful I come back to when working with grieving people. I watch them, sometimes moving in and out of several at once. Or notice how a single loss can open more than one gate. What&#8217;s nice is there&#8217;s always some company waiting there to comfort and console. </p><p><em>*https://www.iheart.com/podcast/1333-bad-therapist-239120992/</em></p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/community-medicine?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Community Medicine</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/the-grief-surrogate?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Grief Surrogate</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/grief-rituals-for-earth-day?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Grief Rituals for Earth Day</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/everyone-mourns-differently-6ec?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Everyone Mourns Differently</a></p></li></ul><p></p>]]></content:encoded></item><item><title><![CDATA[It’s September - Time to Apologize]]></title><description><![CDATA[Continuing our monthly guide for dying well.]]></description><link>https://catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 31 Aug 2026 11:02:44 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!EkR-!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Apologizing in a heartfelt way is a skill <em>and</em> an art - and I have had LOTS of practice. Typically, the benefits of apologizing are felt by the person doing the thing, but it also benefits the receiver to know that they mean enough to warrant an &#8220;I&#8217;m sorry.&#8221;</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!EkR-!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!EkR-!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg" width="1456" height="971" 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!EkR-!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F045fb673-1565-4df5-969d-348b0730287d_2560x1707.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Decades ago, my husband told me I&#8217;m the first person to ever apologize to him without getting defensive or mean. So I&#8217;ve always felt this way. And as a death doula, I see these benefits in new and powerful ways.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><h2>What Haunts People When They&#8217;re Dying?</h2><p>We all define a &#8220;good&#8221; life and death differently. I&#8217;ve never seen any two lives, or deaths, that are exactly alike. However, if there are any commonalities among people at the end of their lives, perhaps it&#8217;s this:</p><ul><li><p>The harm we do to others comes back to us.</p></li><li><p>The kindness we do to others comes back, too.</p></li><li><p>Harmful actions seem to weigh more.</p></li></ul><p>Many death workers report similar findings. It&#8217;s interesting to note that the five essential statements people feel compelled to make before they die (I love you, I forgive you, thank you, I&#8217;m sorry, and goodbye) can be said anytime.</p><p>So, let&#8217;s explore the apology.</p><h2>How to Say You&#8217;re Sorry</h2><p>Many of us wrestle with unresolved issues as we get older. We don&#8217;t have to be actively dying to want to right our wrongs. Feeling a responsibility to atone for misdeeds can happen at any time; dying just adds a sense of urgency to it.</p><p>If a careseeker is struggling with the past and they wonder out loud about solutions, I gently encourage meditation, therapy, and making amends. When we&#8217;re young and healthy, we think trauma resolves itself. It doesn&#8217;t.</p><p>I watch dying people struggle with so many issues, but too many seem haunted by unresolved conflicts in which they blame themselves.</p><p>This is sad to watch.</p><p>Our final days are easier if we&#8217;ve done the work of taking responsibility for our actions before the onset of a terminal illness. Resolve mistakes when they happen. If that&#8217;s not possible, say you&#8217;re sorry later, but while you have the energy and time to do it.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>Because if you don&#8217;t deal with what you&#8217;ve done to others&#8230;it&#8217;ll come back for you.</p><p>What exactly comes back? Some clients tell me they&#8217;re most haunted by the times when they were cruel to people who did not deserve it. They&#8217;ve let someone special slip away, or didn&#8217;t spend enough time with loved ones when they could. These regrets appear to hurt the most.</p><h2>Acts of Lovingkindness</h2><p>I encourage careseekers to write down all the ways they&#8217;ve shown love or compassion to others. Then I ask them to describe these experiences and memories to me.</p><p>Remembering good deeds brings comfort. We talk about the times they&#8217;ve spent with their family, remembering ways they&#8217;ve helped others in need. Maybe they showed someone grace and forgiveness. We discuss the times they&#8217;ve reached out to estranged friends and reconnected.</p><p>They&#8217;re also visibly relieved when sharing with me the times they&#8217;ve already made meaningful amends for a mistake. These moments of contrition help us feel good about ourselves. More than the money we&#8217;ve given away. More than career or athletic achievements.</p><p>My happiest clients are the ones who&#8217;ve taken responsibility for whatever they&#8217;ve done wrong. And those who refuse to seek absolution tend to be the most haunted, especially at night.</p><p>During my workshops and presentations, I interact with hundreds of participants. Many tell me, &#8220;I&#8217;m not good at apologizing.&#8221; That&#8217;s OK! It takes practice. And the best time to start is now.</p><h2>My 2026 Plan to Die Well</h2><p>We&#8217;ve been working on a checklist all year and now, as autumn approaches, it&#8217;s time to say we&#8217;re sorry. I cannot encourage others to do this if I&#8217;m not willing to do it myself. I&#8217;m Jewish, so every year between Rosh Hashanah and Yom Kippur, I apologize in a variety of ways to the people who mean so much to me.</p><p>To be clear, I&#8217;m a big fan of making amends as soon as I&#8217;ve realized I&#8217;m wrong. Over the years, this combination of a yearly review and formal apology, along with saying I&#8217;m sorry at the moment of harm, has helped me get better at both. </p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!SVjX!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!SVjX!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg" width="1456" height="1092" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1092,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:1539741,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:true,&quot;topImage&quot;:false,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/213447925?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!SVjX!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F549cc1ec-a25a-4819-a725-9966da30b64d_4032x3024.jpeg 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Here are some steps I take to make my apology meaningful.</p><p><strong>I usually start by 1) thanking the person if they&#8217;ve brought this transgression to my attention (because that isn&#8217;t easy to do) and 2) acknowledging and admitting my mistake.</strong> In addition to that, I avoid making excuses or blaming others. Instead, I take full responsibility for my actions.</p><p><strong>I show sincere regret</strong> for the impact my actions have had, using words that convey my emotions and that I understand the gravity of the situation.</p><p><strong>I clearly articulate what I am apologizing for.</strong> Providing details about what caused harm. This demonstrates that I&#8217;ve thought about the situation.</p><p><strong>It&#8217;s wise to give the other person an opportunity to express their feelings</strong> and thoughts. I&#8217;m attentive and empathetic. I also avoid interrupting to defend myself.</p><p>This isn&#8217;t always easy!</p><p>We&#8217;re sort of drawn to defend ourselves, aren&#8217;t we? Sometimes I have to remind myself to listen. Put myself in the other person&#8217;s shoes and try to understand how my actions have affected them. </p><p><strong>If there is a legitimate reason for my actions, I briefly explain it</strong>. I&#8217;m cautious not to use this as an excuse. Was I going through a tough time? Maybe we talk about that. Truthful explanations help people understand me better. Most of us empathize with a tough time that leaves someone feeling frustrated. Saying something we later wish we hadn&#8217;t &#8211; is almost universal. Appealing to someone&#8217;s humanity is important if I want them to understand that I didn&#8217;t hurt them on purpose.</p><p><strong>Sometimes, I outline the steps I plan to take to prevent the same mistake from happening again.</strong> As I get older, I&#8217;m thankful that I don&#8217;t usually make huge mistakes because I&#8217;ve learned a thing or two in my younger years. But sometimes, I must admit that growth is a lifelong process.</p><h2>Asking for Forgiveness</h2><p>I don&#8217;t typically do this, but I know others who do, and it works for them. So, I&#8217;ll mention it here for those who might want to give it a go. Humbly request forgiveness, but understand that the other person might need time to process their emotions.</p><p>Be patient and respect their feelings, even if they&#8217;re not ready to forgive immediately.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/its-september-time-to-apologize?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>I often tell my clients that what the other person does with their apology is none of their business. Let that be a relief! After all, we only control ourselves. If we&#8217;ve wronged someone and they aren&#8217;t ready to forgive us, that stings. We naturally want to be met with open arms.</p><p>But there are many reasons why the person might not respond favorably or at all.</p><p>Maybe he has some evolving to do. Maybe she forgave you years earlier and has no desire to go back and revisit the issue. Perhaps they&#8217;ve moved on and want to keep going.</p><p>Whatever it is, you are only responsible for yourself. We&#8217;ve all made mistakes. When we face up to them and tell someone we&#8217;re sorry in a meaningful way, our work is done.</p><p>Be the hero of your story. Apologize while you can.</p><p>Then rest easy.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/2026-a-month-by-month-plan?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Preparing Now to Die Well Later</a></p></li></ul>]]></content:encoded></item><item><title><![CDATA[Sex Workers are Caregivers]]></title><description><![CDATA[And other death doula dispatches from Amsterdam.]]></description><link>https://catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 27 Aug 2026 11:03:12 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!m2t_!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>This summer, I took a trip to Paris, Amsterdam, and Reykjavik. Normally, I don&#8217;t visit the same places twice. But this summer, exorbitant ticket prices made new destinations off-limits. So I revisited some favorites and got to know them a little bit better.</p><p>While in Amsterdam specifically, I noticed something I missed about five years ago when I was first there. Within a few blocks, I walked past the Red Light District, then a smart shop selling psilocybin truffles, and lastly a pharmacy that legally helps people die on their own terms.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!m2t_!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!m2t_!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg" width="1456" height="1092" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/e79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1092,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:3345034,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/212888336?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!m2t_!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe79032da-f835-4af6-a409-774741e2c83a_4447x3334.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>These three things my home country treats as some kind of scandal or tragedy sit on the same street as if they belonged together. Because in the Netherlands, they do.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>In my own work as a death doula, I&#8217;m sometimes with dying people who utilize psychedelics to reduce fears and provide comfort. Some hire sex surrogates or hasten death for the same reasons. It&#8217;s a space where pretense falls away and the things we normally hide become the only things left.</p><p>How wonderful would our lives and deaths be if we saw these as interconnected the way they do in Amsterdam?</p><h2>Care Work, Undressed</h2><p>I&#8217;ve long believed that &#8220;sex worker&#8221; and &#8220;caregiver&#8221; belong in the same sentence. Look at what the research actually says about the labor involved. Sociologists use <a href="https://weld.la.psu.edu/what-is-emotional-labor/">Arlie Hochschild&#8217;s concept of emotional labor</a> - managing your own feelings to produce a desired feeling in someone else - to describe what happens in caregiving professions.</p><p>Scholars studying sex work have drawn on that same framework for decades. When careseekers come to me with sex goals and work with surrogates before they die, I&#8217;ve seen how those surrogates manage emotion in both their public and private roles the same way I do.</p><p>Nurses, doulas, and social workers learn to distance themselves emotionally from clients&#8217; bodies and private lives. We do this as a form of protection and sex workers learn the same skill for the same reason.</p><p>The clearest version of this is in the Netherlands&#8217; own disability and elder care system. I love how the connection between sex work and caregiving is an official job title. Dutch &#8220;sex care workers&#8221; serve people with disabilities or cognitive decline, and research on them finds their strongest motivation is the lack of attention to sexuality support among their clients, combined with a desire to contribute to those clients&#8217; full lives.</p><p>These aren&#8217;t fringe operators.</p><p>Some Dutch citizens access sex services roughly twelve times a year as part of a broader support system. Like physical therapy or a home health aide, this is something psychologists cite for its ability to meet intimacy needs, and it&#8217;s something health researchers point to as a documented antidote to stress and pain.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>This isn&#8217;t unique to disability services.</p><p>One researcher who has spent years interviewing sex workers about their wellbeing said, &#8220;Start from the position that sex work is an occupation like any other. What (I&#8217;m) finding is a workforce doing recognizable emotional labor &#8212; reading a client&#8217;s fear or loneliness, holding a boundary, offering touch as a form of care.&#8221;</p><h2>A Country Prioritizing Its Citizens&#8217; Agency</h2><p>None of this happens in a vacuum. It happens in a country that has spent decades systematically removing shame from common-sense policies.</p><p><strong>Take death. </strong>In 2024, 9,958 people in the Netherlands died by physician-assisted euthanasia &#8212; up 10% from the year before, and the highest number since the practice was legalized in 2002. That means euthanasia now accounts for roughly 5.8% of all deaths nationwide. By 2025 that number had climbed to 10,341 notifications, pushing euthanasia&#8217;s share of all deaths to about 6%.</p><p>That&#8217;s roughly one out of every sixteen deaths in the country.*</p><p>This isn&#8217;t reserved for the imminently dying, either: Dutch law allows physician-assisted death if that person is suffering unbearably with no prospect of improvement. They do this without requiring them to be close to death and now includes some psychiatric conditions.</p><p>Whatever you make of the ethics, the underlying premise is profound:<span> </span>a person&#8217;s own account of their suffering deserves to be believed and acted on.</p><p><strong>Now take altered states.</strong> Psilocybin-containing truffles remain legally available in smart shops across the country, and most scientists and therapists see no harm in ceremonies conducted by experienced facilitators. Practically, this means processing grief and existential dread are things a person can do intentionally, in community, without either a prescription or a warrant for arrest.</p><p>Cannabis has occupied similar territory in Dutch culture for fifty years.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!JHRg!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!JHRg!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg" width="1456" height="971" 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!JHRg!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F9fa81fdb-ba31-4efb-991b-cdf563b96b7a_6000x4000.jpeg 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Put a sex worker&#8217;s contract next to a smart shop&#8217;s truffle menu next to a euthanasia consent form, and I see a clear pattern: the Netherlands created a safe and legal infrastructure for things other countries push into the shadows. I think this is because the Dutch understand that regulation and honesty produce better outcomes than criminalization and denial.</p><h2>What I&#8217;ve Seen</h2><p>Sex work, psychedelic medicine, and assisted dying show up together in the same rooms, for the same people, at the end of life.</p><p>Hospice and palliative care literature has long recognized that dying people carry unmet needs for touch, intimacy, and physical closeness. Dutch sexual support services explicitly extend to elderly people, and one sex care worker described her work in almost hospice-like terms, saying she&#8217;d <em>found her truth and was now happy to be able to support anyone who needs it.</em></p><p>Meanwhile, the psychedelic research world has spent the last decade documenting how a single guided psilocybin session can soften a dying person&#8217;s terror in ways months of talk therapy can&#8217;t touch.</p><p>And euthanasia, when it&#8217;s done well, isn&#8217;t a clinical event &#8212; it&#8217;s a planned goodbye, often with loved ones in the room.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/sex-workers-are-caregivers?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>I don&#8217;t think it&#8217;s a coincidence that the same culture that legalized one of these normalized all three. Shame is a systemic issue. You don&#8217;t get to dismantle it selectively, deciding that dying on your own terms deserves dignity but a sex worker doesn&#8217;t. Or that psilocybin can ease fear of death but two consenting adults exchanging money for intimacy is somehow beneath both of them.</p><p>Nonsense. Let&#8217;s accept that suffering, pleasure, and mortality are things adults can manage on their own terms, with the proper support.</p><h2>Bringing This Home</h2><p>I&#8217;m not naive about the Netherlands. Dutch policymakers themselves are actively wrestling with where these systems&#8217; guardrails should be. Legal and regulated is not the same as risk-free, and I don&#8217;t think it should be treated that way.</p><p>But I keep coming back to what it felt like walking down a street in Amsterdam and feeling entirely unashamed about being a person with a body that needs care, comfort, and &#8211; eventually &#8211; an ending. That&#8217;s what I want for all careseekers. The people going through it are the ones who get to say what they need, and meeting those needs without agenda or judgment is the whole job.</p><p>Sex workers already know this. So do death doulas. Amsterdam has the courage to build their community around it.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="https://anityadoulaservices.org/traveling/traveling-death-doula-series/">Traveling Death Doula Series</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/t/psychedelics">Psychedelics and Death</a></p></li><li><p>&#8220;<a href="/__u/catherinedurkinrobinson.substack.com/p/i-want-an-orgasm-before-i-die">I want an orgasm before I die</a>.&#8221;</p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/sexual-wellness-at-end-of-life?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Sexual Wellness at End-of-Life</a></p></li></ul><p><em><span>*APA 7th Edition:<br>Regional Euthanasia Review Committees (RTE). (2026). Annual Report 2025. Ministry of Health, Welfare and Sport, Government of the Netherlands.</span></em></p>]]></content:encoded></item><item><title><![CDATA[Dying Differently: Neurodivergent and Autistic Careseekers]]></title><description><![CDATA[The gap in end-of-life care we have to talk about.]]></description><link>https://catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 24 Aug 2026 11:02:58 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!zA6W!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Death doulas exist for many reasons. We fill the chasms that hospice and medical systems leave wide open. We provide emotional support, practical planning, and a steady presence through a most disorienting experience. That mission holds true no matter who is dying.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!zA6W!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!zA6W!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!zA6W!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!zA6W!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!zA6W!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!zA6W!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg" width="1456" height="972" 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/__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!zA6W!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F1a0f15c2-ed5c-4428-8e5b-4720dc357c75_2160x1442.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>But I&#8217;ve noticed that it plays out differently depending on who is sitting across from me.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>One group I&#8217;m increasingly likely to encounter is neurodivergent careseekers. Specifically, autistic people who are themselves dying, as well as autistic family members, partners, or caregivers navigating someone else&#8217;s death.</p><p>Right now, most doula training doesn&#8217;t say much about autism or neurodivergence. That&#8217;s a gap worth closing, and soon.</p><p>At their core, autistic careseekers want the same things every dying or grieving person wants: to be treated with dignity. All of my clients need their wishes respected. They don&#8217;t appreciate being rushed through decisions and seek companions who will sit or walk with them during the hard parts.</p><p>An ethical doula model is non-medical, relationship-based, and person-centered. It&#8217;s actually well-suited to autistic clients, more so than a lot of conventional healthcare. This is because it&#8217;s built around asking what someone needs rather than assuming it.</p><p>That&#8217;s the common ground. Differences show up in how we deliver that support.</p><h2>Divergent Needs</h2><p>Autism is a spectrum, and that word matters - a lot. I&#8217;m not talking about &#8220;a little to a lot autistic&#8221; laid out on a single line. A spectrum refers to a wide, non-linear range of differences in how someone thinks, communicates, interacts socially, and processes sensory input.</p><p>Some autistic careseekers are highly verbal and want detailed, literal information. Others are nonverbal or minimally speaking and communicate through AAC devices, written text, or behavior.</p><p>I&#8217;ve had clients hypersensitive to touch, light, or sound. This can be especially tricky in a hospital or hospice room. A few engage in sensory-seeking behavior that looks unusual to an outside observer: jumping, spinning, or rocking. They play with textured toys, seek deep pressure through hugs, and listen to loud sounds for stimulation.</p><p>A one-in-three patients overlap between autism and intellectual disability, noted in guidance from UK-based end-of-life charity Marie Curie. This means some autistic careseekers need additional help with concepts like prognosis or decision-making that go well beyond communication style alone.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>These tips help me to be more mindful when I&#8217;m working with autistic clients:</p><p><strong>Let go of expectations.</strong> My neurodivergent clients processing a terminal diagnosis, or grieving a loss, don&#8217;t display the facial expressions, tone of voice, or emotional pacing I&#8217;m trained to read. I often remind myself, and other professionals on the care team, that a flat affect doesn&#8217;t mean someone is unfeeling. Repetitive movements (called stimming), a need to talk about a special interest, or what looks like &#8220;changing the subject&#8221; means they&#8217;re working through grief, not avoiding it.</p><p><strong>Words matter. </strong>Palliative and hospice care is full of euphemisms like &#8220;passed away,&#8221; &#8220;we&#8217;re just keeping her comfortable,&#8221; and &#8220;not much time left.&#8221; I&#8217;ve worked with autistic loved ones who process language literally. Our vague or metaphorical phrasing creates real confusion at a moment when they need transparency more than anything. For them, being direct and specific is the most respectful and least distressing way we can communicate.</p><p><strong>Clarity, clarity, clarity. </strong>Uncertainty is already one of the hardest parts of the end-of-life experience. I&#8217;ve noticed that for many neurodivergent people, that&#8217;s a distinct source of distress on top of everything else. Where possible, let&#8217;s offer a clear sense of what&#8217;s going to happen rather than leaving those things open-ended. We know what&#8217;s coming, so let&#8217;s help autistic loved ones understand what&#8217;s coming, too.</p><p><strong>Let awareness guide the work.</strong> I am mindful about bright lights, background noise, strong smells (flowers, cleaning products, perfume), and physical touch like hand-holding or hugs. When looking through the lens of neurodivergence rather than neurotypical, these can all be overwhelming rather than comforting. Asking about sensory preferences must be as standard as asking about pain levels.</p><p><strong>Advance planning tools need adapting. </strong>Traditional living will and legacy-project prompts often encourage abstract, open-ended reflection (&#8221;What does a good death mean to you?&#8221;). I&#8217;ve noticed that autistic careseekers do better with structured formats and written options to choose from. Visual supports and extra processing time work better than being asked to generate an answer on the spot.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!negp!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe8749e42-787f-4b32-9a72-e0c3155eca6f_5790x3860.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!negp!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe8749e42-787f-4b32-9a72-e0c3155eca6f_5790x3860.jpeg 424w, 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/__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe8749e42-787f-4b32-9a72-e0c3155eca6f_5790x3860.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!negp!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe8749e42-787f-4b32-9a72-e0c3155eca6f_5790x3860.jpeg 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p><strong>Autistic family members may be masking or undiagnosed. </strong>This is true for adult children or spouses coordinating end-of-life care. That makes it hard for a doula to notice they need specific support. Check in directly, rather than reading only their body language.</p><h2>Bring Basic Strategies Into Our Work</h2><p>To summarize&#8230;</p><ul><li><p>Ask, don&#8217;t assume: sensory needs, communication preferences, and comfort with touch vary enormously even within the same family.</p></li><li><p>Offer information in spoken, written, or visual formats. This gives everyone time to process what&#8217;s happening.</p></li><li><p>Use direct, concrete language about death, dying, and what to expect. No metaphors or idioms.</p></li><li><p>Build predictable routines and give advance notice of changes (cue before you do) wherever possible.</p></li><li><p>Recognize atypical grief expression (intense meltdowns, stimming, flatness) as valid grief rather than disengagement.</p></li></ul><p>Loop in speech and language professionals or AAC specialists when you need communication support.</p><h2>Why This Matters</h2><p>This isn&#8217;t a niche consideration.</p><p>According to the CDC, in 2025, autism prevalence among 8-year-olds in the U.S. was 1 in 31. That&#8217;s up from 1 in 36 just two years earlier, and 1 in 150 when tracking began in 2000. Part of this is due to better diagnostic criteria and awareness, but the practical result is the same: more autistic children are growing into autistic adults, and more of them will, in time, need us. They&#8217;ll be the person dying or a grieving loved one holding a family together through loss.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/dying-differently-neurodivergent?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>Academic reviews of death doula work already note a broader demand for end-of-life services expected in the coming years as populations age; autistic adults are a growing share of who&#8217;ll be looking for that support.</p><p>Doula training programs, credentialing bodies, and individual practitioners &#8211; there&#8217;s an opportunity here. Let&#8217;s not treat autism as a specialty add-on. Instead, let&#8217;s build autism literacy into the baseline of what it means to do our work well.</p><p>The families are already showing up. The question is whether we&#8217;re ready for them.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/what-is-an-end-of-life-doula?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">What is an End-of-Life Doula</a>?</p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/death-doulas-in-hospitals-and-nursing?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Death Doulas in Hospitals and Nursing Homes</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/my-6-favorite-end-of-life-planning?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">My Favorite End-of-Life Planning Guides</a></p></li></ul><p></p>]]></content:encoded></item><item><title><![CDATA[Terminal Agitation, Explained]]></title><description><![CDATA[When a dying person becomes restless or angry &#8211; and how to help.]]></description><link>https://catherinedurkinrobinson.substack.com/p/terminal-agitation-explained</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/terminal-agitation-explained</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 20 Aug 2026 11:03:26 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!zKbI!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>As we prepare for death, we often become preoccupied with the physical components. For example, we get a room ready. Order a portable commode or hospital bed to help make us more comfortable. We ask many questions about what our bodies will do as we slow down.</p><p>All of this is important. But what about emotional and psychological changes that are coming? Unfortunately, we don&#8217;t always think about these aspects of the experience and, as a result, experience discomfort of a different sort.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!zKbI!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!zKbI!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg" width="1456" height="971" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/bb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:971,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:925058,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/211915991?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!zKbI!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbb922f50-84fb-4a68-b8a0-e57325a72830_3000x2000.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>When all three &#8211; physical, emotional, and psychological distress &#8211; combine, it often leads to terminal agitation. Awful, yes, but I&#8217;d argue - mostly avoidable.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/terminal-agitation-explained?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/terminal-agitation-explained?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Everybody is different. No two lives are the same, and no two deaths are the same either. Nonetheless, I&#8217;ve seen some commonalities in the dying process, including common feelings or emotions.</p><p>Not all of them, negative.</p><p>For example, dying people become understandably less interested in the outside world. They&#8217;ve got a lot going on inside themselves and sometimes withdraw from family and friends. Engaging in a &#8220;life review&#8221; is normal. During this important introspection, some careseekers want to be surrounded by very close loved ones. Others want to be completely alone.</p><p>They often spend their days contemplating everything, which means letting go and saying goodbye.</p><p>I&#8217;ve also seen many folks exhibit a unique awareness that confuses caregivers and visitors as death draws near. They talk to loved ones the rest of us can&#8217;t see or hear. Other times, they talk about a trip or &#8220;going away&#8221; somewhere.</p><p>A person close to death may have trouble remembering something that just occurred while remembering with great detail the events of long ago.</p><p>It&#8217;s not unusual for an impending death to bring periods of delirium. This can be the result of a drug&#8217;s side effects or changes in metabolism. Delirium looks different depending on the person but usually includes hallucinations or changes in consciousness. Medication helps ease these symptoms.</p><h2>A Deep and Painful Agony</h2><p>Terminal agitation is more extreme than the above examples and appears toward the very end of life. I&#8217;ve seen it most often show up as someone pulling or tugging at their bedsheets or clothes. They&#8217;re restless.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>Other symptoms include:</p><ul><li><p>Verbal outbursts</p></li><li><p>Anger</p></li><li><p>Hostility</p></li><li><p>Pulling out medical tubes</p></li><li><p>Indecisiveness</p></li></ul><p>I&#8217;ve seen careseekers of different races, religions, and cultures experience terminal agitation. Some believe in a higher power; others do not. The one thing they had in common? Controlling personalities with notable anger and frustration.</p><h2>The Root of It</h2><p>By the time someone has this affliction, they&#8217;re usually unconscious or close to it. They can&#8217;t easily tell us what&#8217;s ailing them. I work with loved ones and experienced hospice nurses to try and figure it out so we can help them feel better.</p><h3>Pain</h3><p>It&#8217;s hard to be comfortable when we&#8217;re experiencing physical pain. This is especially true if someone postponed palliative or hospice care. Careseekers who choose hospice early on are better supported with medication and often avoid the physical suffering that leads to agitation.</p><p>I&#8217;ve also seen really great hospice nurses leaning close to a person&#8217;s face and asking simple yes-or-no questions, looking for changes in facial expressions to give us a clue. It could be that a catheter is needed or a sip of water.</p><h3>Emotional Suffering</h3><p>Sometimes my clients are angry about dying. This doesn&#8217;t just happen to the young. We can all feel like we&#8217;re leaving too soon - no matter our age.</p><p>While my clients are able, we make a list of what they&#8217;d like to do before they die. I help them prioritize and figure out a death plan for what&#8217;s reasonable. Therapists or psychologists also help ease suffering. They allow my clients to deal with unfinished business and the emotions that come along with it. That reduces the risk they&#8217;ll get agitated while actively dying.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!bTXs!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!bTXs!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg" width="1456" height="971" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:971,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:3181761,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:true,&quot;topImage&quot;:false,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/211915991?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!bTXs!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F4f712f3f-bff1-4866-bd9c-e6b6f072ff33_6000x4000.jpeg 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><h3>Confusion</h3><p>Those suffering from dementia especially get angry because they can&#8217;t cope with being so confused. A team with experience supporting patients with cognitive decline responds in ways that help dementia patients transition more peacefully and with less irritation.</p><h3>Drugs and Side Effects</h3><p>Some medicine that reduces anxiety also increases the risk of agitation. An experienced medical team will adjust medication as symptoms vary from person to person.</p><h3>Organ Failure</h3><p>When the liver and kidneys start to slow down, metabolism and chemistry alter our personality. Heart and lung failure also results in lower oxygen levels, and irritation follows.</p><p>Again, call hospice before it&#8217;s an emergency situation. Medical teams who are on call earlier get to know their patients, their medical history, and help alleviate terminal agitation by reducing symptoms of:</p><ul><li><p>Anemia</p></li><li><p>Infections</p></li><li><p>Fevers</p></li><li><p>Urinary retention</p></li><li><p>Constipation</p></li></ul><h2>Informed Caregivers Make a Difference</h2><p>Understand that even though terminal agitation isn&#8217;t personal, there are things caregivers can do to make it less of an issue.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/terminal-agitation-explained?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/terminal-agitation-explained?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/terminal-agitation-explained?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>For example:</p><ul><li><p>Remember and apply the <a href="/__u/catherinedurkinrobinson.substack.com/p/dont-unload-on-the-dying?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Ring Theory</a>. You&#8217;re going to naturally feel sad, but it&#8217;s your role to &#8220;comfort in, dump out.&#8221;</p></li><li><p>Find a solid support system to work through any troubles or emotional pain you&#8217;re experiencing as a result of providing care. Take time to process your feelings and care for yourself. This is how you better care for others.</p></li><li><p>Stay calm when interacting with your dying loved one.</p></li><li><p>Lower your voice, even if your loved one gets louder.</p></li><li><p>Do not argue.</p></li><li><p>Sit down rather than stand over the person. This will help lower their anxiety.</p></li><li><p>Keep your body open and receptive. For example, uncross your arms and legs.</p></li><li><p>Take breaks to meditate and breathe.</p></li><li><p>Create a peaceful space.</p></li><li><p>Make sure only positive people visit and hold vigil.</p></li><li><p>Turn the lights down, play soft music, and limit the number of visitors.</p></li><li><p>Ask if you may hold their hands and be okay sitting in silence.</p></li><li><p>Check with the medical team frequently. Make sure they are doing everything in their power to ensure your loved one is comfortable. This includes asking about palliative sedation.</p></li></ul><h2>Preparation Makes a Difference</h2><p>Before you start actively dying, build a supportive care team. Address emotional and spiritual needs before it&#8217;s too late. Talk with hospice teams to make sure they&#8217;ll support loved ones who request palliative sedation when you cannot.</p><p>This helps make the last few days easier for everyone involved.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/lets-talk-about-palliative-sedation?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Let&#8217;s Talk About Palliative Sedation</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/choose-the-best-hospice-in-your-area?r=py6bb&amp;utm_campaign=post-expanded-share&amp;utm_medium=web">Choose the Best Hospice in Your Area</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/the-burden-of-deathbed-rage?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">The Burden of Deathbed Rage</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">My Checklist for the Dying</a></p></li></ul>]]></content:encoded></item><item><title><![CDATA[Community Medicine]]></title><description><![CDATA[Holding grief as a source of reassurance and stability for my community.]]></description><link>https://catherinedurkinrobinson.substack.com/p/community-medicine</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/community-medicine</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 17 Aug 2026 11:03:35 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!8mll!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>I&#8217;ve noticed a particular kind of quiet that settles over a room when someone is dying. Voices get lower. People start speaking in half-sentences, unsure whether it&#8217;s okay to talk or cry or laugh. Everyone is watching everyone else for cues about how to behave.</p><p>That&#8217;s usually because no one in the room has any real practice at this.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!8mll!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!8mll!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!8mll!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!8mll!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!8mll!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!8mll!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg" width="898" height="718" 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/__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!8mll!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fdbbe4fd8-682b-4452-9834-34975c309188_898x718.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Death doulas serve exceptionally well in these rooms. We have had that practice. The real, repeated practice of sitting beside grief without fear or anxiety. Without rushing everyone through it. Without needing it to resolve.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/community-medicine?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/community-medicine?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>We&#8217;re more than merely a comfort. We&#8217;re an anchor.</p><h2>Meeting The End More Than Once</h2><p>Most people meet grief for the first time as adults. This is a moment where they&#8217;re unprepared, often in the worst week or day of their lives. A death doula meets grief for a living. We&#8217;ve sat at so many bedsides, held loved ones through the hours after a last breath, and walked alongside dozens of different timelines of mourning.</p><p>We understand that some mourn in waves, others go numb, and some grief shows up as anger instead of tears.</p><p>That repetition and practice builds a gentle kind of calm within us. We&#8217;re familiar with it. When a death doula sits with a family in loss, we aren&#8217;t guessing at what might help. We know, because we&#8217;ve watched grief move through similar spaces before.</p><p>This is the quiet reassurance death doulas offer a wider community, beyond the loved ones and care circles we&#8217;re directly serving. Our presence tells everyone that this is survivable. Mourners listen when we say, &#8220;You&#8217;re not doing it wrong.&#8221; Our stabilizing words come at just the right moment.</p><h2>The Skill Underneath the Calm</h2><p>Digesting grief well is a trained skill but involves a few specific capacities that anyone can adopt. This includes:</p><p><strong>Being fully present </strong>with someone&#8217;s pain without absorbing it. That allows us to sit through sorrowful moments without falling apart.</p><p><strong>Avoiding meaningless narrations</strong>. Instead of &#8220;she&#8217;s in a better place,&#8221; I might say, &#8220;this is the hardest thing you&#8217;ll go through, and I&#8217;m not going anywhere.&#8221; Grief must be witnessed accurately.</p><p><strong>Reading actual needs. </strong>Some loved ones want silence. A few want a professional to handle logistics so they can fully process what&#8217;s happening. Others want stories and laughter at the bedside. We sense which response or technique is needed and adjust our energy without being asked.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p><strong>Holding uncertainty.</strong> Death rarely adheres to a schedule, and grief never follows a predictable pattern. Doulas are comfortable not knowing when or how someone will feel from one day to the next, and that comfort is contagious.</p><h2>Ritual as a Container</h2><p>One of the most concrete tools we bring to a community is ritual. It&#8217;s those structured, repeatable acts that give shape to our feelings. As a writer, I&#8217;m blown away by how direct actions speak so much louder than words. That&#8217;s because ritual doesn&#8217;t require us to know the perfect things to say. We need only to participate.</p><p>A few examples:</p><p>In the final days or hours, doulas sometimes gather loved ones for a simple bedside vigil: we lower the lights, play quiet music or none at all, and gently encourage each person to speak directly to the dying person, even if they&#8217;re unconscious.</p><p>Weeks or months before death, I might talk my client through recorded life reflections. We discuss what they want remembered, what they forgive, or what they&#8217;re proud of. The recording becomes a cherished possession their loved ones return to, a powerful bereavement tool in the weeks and months ahead.</p><p>Sometimes I open a window, ring a bell, or light a candle at the moment of passing. It&#8217;s a small, sensory marker that tells us &#8220;something sacred has occurred&#8221; when our minds are too overwhelmed to process it.</p><p>For religious taharah rituals or a more secular home funeral, doulas help lead a gentle, unhurried washing of the body after death. Rather than outsourcing entirely to strangers, this ancient practice, found across many cultures, turns caregiving into a final act of love.</p><p>In the weeks after a death, I&#8217;ll sometimes host informal gatherings where a chair is left empty for the person who died, and others share memories addressed to that chair. It gives grieving loved ones permission for that grief to be spoken aloud in community. They don&#8217;t have to carry it alone.</p><p>A year after a death, I&#8217;ve helped families begin a small annual practice. We plant something, cook a meal the person loved, or visit a specific place. Sometimes grief needs a scheduled acknowledgment where people know it&#8217;s coming ahead of time.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/community-medicine?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/community-medicine?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/community-medicine?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>These rituals don&#8217;t erase our pain. That&#8217;s never my goal. Instead, they help give our grief both shape and meaning. A beginning and an end for that particular gathering, so that loved ones aren&#8217;t left feeling aimless or unprotected.</p><h2>Steadying More Than Families</h2><p>A death doula&#8217;s real service to a community isn&#8217;t limited to the individual family we&#8217;re hired to help. It&#8217;s our demonstration, repeated over and over across a community, of meeting death with steadiness and compassion. Every ritual we lead, every vigil we hold with calm attention, every family we walk with through the strange logistics of dying without judgment&#8230; these teach everyone that we survive heavy losses.</p><p>And we don&#8217;t have to do it alone.</p><p>That&#8217;s the cumulative gift of doing this work. Death isn&#8217;t easy. But a community of caring people, watching someone hold it well, learns they can hold it too.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/what-is-an-end-of-life-doula?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">What is an End-of-Life Doula</a>?</p></li></ul>]]></content:encoded></item><item><title><![CDATA[Death Positivity vs. Death Cults]]></title><description><![CDATA[The difference between accepting mortality and weaponizing death.]]></description><link>https://catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 13 Aug 2026 11:01:56 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!E7Dw!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>The phrase &#8220;death cult&#8221; gets thrown around a lot these days in political commentary. It describes, in a very real and visceral way, current right-wing leaders and those who love them no matter the cost. At the same time, a different phrase, &#8220;death positivity&#8221; (or death literacy), has been gaining traction in hospice care, palliative medicine, and end-of-life planning circles.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!E7Dw!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!E7Dw!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg" width="1456" height="1092" 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!E7Dw!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe87a86f7-c05d-4769-a8e1-b0903b83303d_2200x1650.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>On the surface, both terms seem similar. They&#8217;re both about death. But that&#8217;s where the resemblance ends. And since people have written to me with confusion about the two topics, I thought I&#8217;d go over the difference in my death-positive community here on Substack, confirming why we&#8217;re vehemently against the death cult mindset.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Death positivity describes a movement rooted in honesty. Like my columns, it promotes preparation and agency in the face of mortality. Death cults, as I&#8217;ll argue, describe an inversion: the political posture in which death is weaponized.</p><h2>A Distinction</h2><p>&#8220;Death cult&#8221; has been used, historically, to describe a group whose leader directs followers to their actual deaths. But more recently, it&#8217;s hurled at political movements, regimes, or ideologies to say they <em>glorify</em> death and violence. This newer definition is used to convey a moral horror about what&#8217;s happening in many parts of the world.</p><p>So let&#8217;s talk about it.</p><p>Understanding the difference between death cults and death positivity matters to me, because conflating the two (or worse, mistaking one for the other) obscures two diametrically opposed movements. Besides, when political loyalty starts to override self-preservation and, even worse, the safety of others, the whole world suffers.</p><h2>What Makes a Political Movement a Cult?</h2><p>Members of a death cult exhibit an unusual willingness to accept policies with lethal consequences. This is because they prioritize loyalty to an autocratic leader above all else. Sound familiar?</p><p>During the COVID-19 pandemic, for example, misinformation about vaccines and public health measures was widespread within the MAGA movement. Mortality data showed Republican-leaning counties experiencing higher excess death rates than Democratic-leaning ones. I&#8217;d argue that this pattern extends beyond the pandemic to policy areas like healthcare access, gun regulation, and environmental protection. Opposition to intervention is framed as a matter of loyalty rather than a straightforward policy disagreement.</p><p>And the death cult members, while dying and suffering in outrageous numbers, keep going along with it.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>Necropolitics - a term coined by philosopher Achille Mbembe - describes how political power operates by deciding who is allowed to live and who is exposed to death. Authoritarian-leaning movements all over the world sustain themselves by designating certain groups (immigrants, racial minorities, LGBTQ+ people, the poor) as more expendable. This makes their suffering or death politically tolerable. For some of the more fanatical supporters, it&#8217;s even useful.</p><h2>Compare and Contrast</h2><h3>Goals</h3><p><strong>Death Positive: </strong>Accept mortality, live better, plan wisely<br><strong>Death Cults: </strong>Gain political power, often using marginalized communities as a scapegoat</p><h3>Structure</h3><p><strong>Death Positive: </strong>Open, decentralized, anyone can join/leave<br><strong>Death Cults: </strong>Closed, hierarchical, isolating members using fear</p><h3>Power Dynamic</h3><p><strong>Death Positive: </strong>No central authority demanding obedience<br><strong>Death Cults: </strong>Charismatic leader with near-total control</p><h3>Relationship to Death</h3><p><strong>Death Positive: </strong>Talk <em>about</em> death to reduce fear<br><strong>Death Cults: </strong>Move marginalized groups <em>toward</em> death</p><h3>Outcomes</h3><p><strong>Death Positive: </strong>Better planning, less anxiety, informed choices<br><strong>Death Cults: </strong>Destruction, murder, exploitation</p><p>Those who oppose death cults, like me, believe that any rhetoric dehumanizing marginalized groups also normalizes policies that disproportionately endanger those groups&#8217; lives. That&#8217;s not what we&#8217;re about.</p><p>Death positivity, on display throughout my work, is the practical knowledge needed to directly navigate mortality, grief, and end-of-life decisions. It&#8217;s fundamentally about <em>individuals</em> reckoning with death&#8217;s inevitability in order to live more wisely. Through education and literacy, we&#8217;re oriented toward agency, informed consent, and care.</p><p>A &#8220;death cult&#8221; describes something closer to <em>collective denial or instrumentalization</em> of death: a dynamic where death becomes politically useful rather than something confronted honestly.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/death-positivity-vs-death-cults?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>Think about current conditions of blockade, displacement, and civilian casualties in Gaza, Iran, and drone strikes/destruction of identity markers in Ukraine. Consider Mediterranean and U.S.-Mexico border deaths. What about cuts to public health, social services, and education spending in already underserved populations? Resource extraction, land grabs, and ecological degradation in postcolonial regions?</p><p>Where death literacy asks, &#8220;How do we prepare for and make peace with mortality?&#8221; the necropolitical critique asks, &#8220;Whose mortality gets treated as an acceptable cost of a proper world order?&#8221;</p><h2>Moral Horror</h2><p>None of this is to say that everyone who resists a given public health mandate or contests a particular policy is participating in a death cult. Reality is more nuanced and messier than that. I support a healthy distrust of institutions, economic precarity, or genuine policy disagreement. Besides, motive is hard to prove, and correlation in mortality data doesn&#8217;t settle questions of intent.</p><p>But the distinction I want to draw isn&#8217;t about individual motives; it&#8217;s about structure. Death literacy is oriented toward clear eyes and informed choice. Necropolitical dynamics are oriented toward obscuring whose deaths count and whose don&#8217;t, prioritizing loyalty to the supreme leader.</p><p>Learning to tell the two apart &#8211; both in ourselves and in the movements we belong to &#8211; is, in its own way, a valuable form of death literacy.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/death-denial-leads-to-tyranny-death?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">How Death Denial Leads to Tyranny</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/the-grief-surrogate?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">The Grief Surrogate</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/the-urgency-of-now?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">The Necessity of Harm Reduction</a></p></li></ul>]]></content:encoded></item><item><title><![CDATA[My Checklist for the Dying]]></title><description><![CDATA[A to-do list we can all start right now.]]></description><link>https://catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 10 Aug 2026 11:04:04 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!fyql!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>What does it mean to &#8220;get your affairs in order&#8221;? That&#8217;s what we&#8217;re tackling this month*. It&#8217;s what doctors say when confirming a terminal diagnosis. But getting your affairs in order means different things to different people. Most of my clients want a list of practical items they need to address at the end of their lives. Some careseekers are more concerned with the emotional and spiritual.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!fyql!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!fyql!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg" width="1456" height="969" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/af170fc2-933a-4243-af70-826271988581_4256x2832.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:969,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:684828,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/210376027?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!fyql!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Faf170fc2-933a-4243-af70-826271988581_4256x2832.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Over the years, I&#8217;ve developed a checklist for all three.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><h3>1. Learn About the Illness or Disease</h3><p>This is your experience, no one else&#8217;s. So get educated. Keep a notebook handy to write down every symptom and bring that with you to the doctor&#8217;s appointments. Bring another person, too. And use that notebook to write down what the doctor says.</p><p>Yes, it&#8217;s scary to ask about the trajectory of an illness. However, much of that fear of the unknown goes away when we know. It feels empowering. Take some time in the beginning to fully comprehend all the physical, mental and/or emotional changes to better prepare for them.</p><h3>2. Practice Patience</h3><p>We feel a variety of emotions responding to a new reality. Some days will be better than others, so I help clients put some plans in place for self-care. We contact a grief counselor, begin meditating or praying on a regular basis, or keep a journal. If my client is confined to a room, we bring in plants, pictures, candles or anything that might provide them with comfort. That helps careseekers feel better and their visitors respond well to the peaceful environment.</p><h3>3. Determine Goals</h3><p>One of the first questions I ask is, &#8220;What do you want to do with the rest of your life?&#8221; Some want to reach out and say, &#8220;I&#8217;m sorry,&#8221; &#8220;I love you,&#8221; or &#8220;I forgive you&#8221; to estranged loved ones. I&#8217;ve had clients get married to the love of their life before they die. One needed support to see their granddaughter&#8217;s graduation. We talk about what they want to do and see what goals are feasible and can be accomplished.</p><h3>4. Choose a Location to Die</h3><p>My clients and I consider their options for where they can comfortably die according to their own wishes. This might be at home, in a hospital or nursing home, or somewhere else entirely. The location is based on their condition and whether they want certain medical professionals on hand for whatever they might need. Now is the time to make sure it&#8217;s a viable option. </p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><p>What if a partner, child, or roommate doesn&#8217;t want them to die at home? Often, that comes from a place of fear. Usually, after a few sessions, they learn about what that really means and change their minds. But, if they still feel anxious about it, we can find another location. This is why we need to discuss this sooner, rather than later.</p><h3>5. Consider Social Media</h3><p>Put someone in charge of social media accounts with clear instructions on what to do with those accounts after you die.</p><h3>6. Create a Care Team</h3><p>This includes people providing:</p><ul><li><p>Emotional or spiritual support.</p></li><li><p>Hospice care.</p></li><li><p>Help with household chores on a daily or weekly basis. (Cooking, cleaning, grocery shopping, etc.)</p></li><li><p>Transportation to or from doctor&#8217;s appointments.</p></li><li><p>Personal care such as haircuts, pedicures or manicures, waxing, shaves, etc.</p></li><li><p>Assistance with scheduling volunteers, visits and medical care.</p></li></ul><h3>7. Call an Attorney</h3><p>Create or update your will and estate paperwork. Put all your account information, including passwords, in a secure location. Make sure your beneficiaries are named and contact a financial advisor if needed. </p><h3>8. Create Advance Directives</h3><p>Put all your wishes about future healthcare in writing. This includes a durable power of attorney, someone who can and will make medical decisions for you when you cannot. Create a living will. Be very clear about the treatments you want or don&#8217;t want at the end of your life.</p><p>Lastly, create a Do Not Resuscitate or Do Not Attempt Resuscitation order. Both you and your doctor will sign the DNR to make it official.</p><h3>9. Consider Donations</h3><p>Donating your organs and tissue is a lovely way to give the gift of life. Research local medical schools or other places that would also take a whole body donation for research needs. Include these instructions in your advance healthcare directive.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!iWGr!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!iWGr!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!iWGr!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!iWGr!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!iWGr!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!iWGr!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg" width="1456" height="971" 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/__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!iWGr!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fe995ed38-9d53-4d9f-acfe-ec06fc663991_5185x3457.jpeg 1456w" sizes="100vw" loading="lazy"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Consider whether you want people to donate to a particular organization in your honor. Is there a charity or nonprofit organization that means a lot to you? We can list it in the obituary or tribute after the death. We can also discuss what to do with any leftover household items &#8211; many charities have thrift shops where they can sell clothes, furniture, etc.</p><h3>10. Pre-Plan the Funeral or Memorial Service</h3><p>Contact at least three local funeral homes to compare prices. You have lots of options to consider, including:</p><ul><li><p>Cremation (Traditional or Liquid)</p></li><li><p>Burial (Traditional or Conservation Cemetery)</p></li><li><p>Embalming or Refrigeration</p></li><li><p>Home Funeral</p></li><li><p>Natural Reduction</p></li></ul><p>Make arrangements ahead of time, including payment, to ensure your wishes are met and make things easier on loved ones.</p><h3>11. Begin a Legacy Project</h3><p>Organize your most requested recipes, write out your life story, send emails to your kids telling them everything you love about them. This fills your remaining days with meaning and you&#8217;ll leave behind a wonderful gift to be treasured for generations to come.</p><h3>12. Give Some Thought to Spiritual Matters</h3><p>Sometimes, this is when we begin to think about our fears. One of my first questions is, &#8220;What scares you about dying?&#8221; A hospice or medical team handles physical discomfort, and we definitely begin those conversations.</p><p>What about emotional or spiritual discomfort? Again, I tell my clients, &#8220;This is your experience.&#8221; So we must think about what they need for support. Would it be helpful to have a chaplain on the support team? What about a priest, rabbi, imam or pastor? If they belong to a particular house of worship, now is the time to include whoever might make this a more peaceful transition.</p><p>If they don&#8217;t belong to a specific community, I might begin researching to find someone available to provide pastoral care.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/my-checklist-for-the-dying?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>Or we might begin to think about meditation, journalling, psychedelics, and other options.</p><h3>13. Make Every Moment Count</h3><p>I encourage my clients to do what they want as often as they can. Listen to favorite songs. Watch the sunrise or sunset. Hold hands with loved ones. Keep the windows open to breathe fresh air. I might put their bed in a room where they can see the garden or people walking by on the street. Listen to the birds.</p><p>This is the time to do whatever brings joy. My clients may not have a great deal of time left; however, they can decide how to spend that time. And make it count.</p><h2>No Need to Wait</h2><p>Not everyone is going to do everything on this list. Some may add items that I haven&#8217;t covered here (like declutter their home, determine who will care for pets, etc.) or check the items off in a different order altogether. </p><p>One thing is for certain &#8211; we don&#8217;t have to wait until we&#8217;re dying to do many of these tasks. If you&#8217;ve been following along with my monthly guide this year, you&#8217;ll notice this is a familiar refrain: Get started now. Preparing ahead of time will lead to a better death someday, and a better life right now.</p><p><em>*<a href="/__u/catherinedurkinrobinson.substack.com/p/2026-a-month-by-month-plan?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">my 2026 Monthly Guide to Dying Well</a></em></p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/my-6-favorite-end-of-life-planning?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">My 6 Favorite End-of-Life Planning Guides</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/its-march-lets-declutter-before-death?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Declutter Before Death</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/earth-friendly-post-death-options?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Earth-Friendly Post-Death Options</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/your-bucket-list-is-a-compass?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Your Bucket List is a Compass</a></p></li></ul>]]></content:encoded></item><item><title><![CDATA[The Necessity of Harm Reduction ]]></title><description><![CDATA[Bridging the gap between best and worst-case scenarios.]]></description><link>https://catherinedurkinrobinson.substack.com/p/the-urgency-of-now</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/the-urgency-of-now</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 06 Aug 2026 11:01:29 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!9bqk!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Systemic change is slow and incremental, all while our reality moves along quickly without pause. My Florida clients in crisis don&#8217;t have the luxury of waiting for a bill to pass to get Medical Aid in Dying. They need a peaceful way to hasten death right now. My Illinois clients can&#8217;t sit around waiting for a court to rule on psilocybin; they need a way to achieve equanimity now, before they die. </p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!9bqk!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!9bqk!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg" width="1456" height="1091" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1091,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:3376902,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/209964684?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!9bqk!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F93829bcf-2ead-4151-8482-419459cba0a8_5775x4328.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>And what about cultural norms? They move even slower. Grown children all over the country care for parents who&#8217;ve made no advance directives. Who were too scared to address their aging or mortality. That means their children are stuck with very few options - and none of them good.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-urgency-of-now?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/the-urgency-of-now?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>When a need arises, we can&#8217;t always look to our culture or systems for support. The urgency of now means looking through the lens of harm reduction. It&#8217;s not a substitute for structural transformation, but rather an ethical practice of meeting people where they&#8217;re at and providing much-needed comfort.</p><h2>Desperate Times Call For Desperate Measures</h2><p>Harm reduction started, formally for me, in the fight against HIV/AIDS in the late 80s. As a young volunteer with Tampa AIDS Network, I worked with AIDS Coalition to Unleash Power (ACT-UP) activists. We organized needle exchanges, handing out clean syringes because people who use drugs deserved to live no matter how badly society viewed their behavior. I also learned to demand &#8211; and acquire &#8211; medicines for deathly ill people immediately rather than wait for bureaucracies to take years to approve them first.</p><p>This experience was instrumental in forming my belief that yes, we must work for change, while urgently helping people who can&#8217;t wait for humanity to get their act together.</p><p>We all know the real, sometimes profound, mental health benefits from medicines like psilocybin and MDMA-assisted therapy. Careseekers and their therapists come to me with end-of-life anxiety. But where we live, these medicines remain illegal. Travel to get access to them is expensive and time-consuming.</p><p>People seek these experiences out of desperation and genuine therapeutic need. The systemic fix is obvious, and I&#8217;m part of several organizations pushing for research, funding, rescheduling, insurance coverage, and trained clinical facilitators.</p><p>Until that arrives, harm reduction fills the gap.</p><p>Trained trip sitters like me transform a potentially destabilizing experience into a safer one. A testing kit or organization is the difference between a psychedelic experience and a fentanyl death. Integration circles help careseekers process their journeys instead of being left alone with them.</p><p>Those of us in this space accept a certain kind of risk, along with our clients, because there&#8217;s a need and we won&#8217;t ignore that call.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/subscribe?&quot;,&quot;text&quot;:&quot;Subscribe now&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/subscribe"><span>Subscribe now</span></a></p><p></p><h2>A Broader Ethic</h2><p>For me, the same logic applies in other areas. Harm reduction is about refusing to wait around for a perfect world while people are suffering right now. Some examples&#8230;</p><ul><li><p>We&#8217;re working toward full decriminalization and labor protections for sex workers. That&#8217;s the goal. But until then, surrogates and others share &#8220;bad date&#8221; lists, buddy-check systems, and safety protocols.</p></li><li><p>In states that have restricted or banned abortion since Dobbs, the systemic fight continues in courts and legislatures. In the meantime, activists and mutual aid networks fund travel and lodging to places like my neighborhood in Chicago, and distribute accurate information about self-managed medication abortion. Literally life-saving in places where legal access has vanished.</p></li><li><p>&#8220;Housing First&#8221; models give unhoused people stable places to live without requiring sobriety or program compliance first. We cannot expect someone to stabilize their life from the sidewalk. Added bonus? It works better than other models.</p></li><li><p>Another lesson from my home in Chicago: migrant sanctuary networks, rapid-response hotlines, and know-your-rights trainings make an immediate difference. They aren&#8217;t fixing an unjust immigration system. But we are able to fight ICE and keep families together while working toward that larger goal.</p></li></ul><p>In every case, an injustice is identified, people are exposed to real and often severe harm because of it, and a community response emerges to reduce that harm.</p><h2>Harm Reduction at the End of Life</h2><p>For my dying clients, I believe that when there is no perfect option, we must choose the path that minimizes suffering, preserves dignity, and reflects their values. The &#8220;best&#8221; medical choice and the &#8220;least harmful&#8221; human choice aren&#8217;t always the same thing.</p><p></p><div class="captioned-button-wrap" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-urgency-of-now?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="CaptionedButtonToDOM"><div class="preamble"><p class="cta-caption">Thanks for reading A Death Doula's Substack! This post is public so feel free to share it.</p></div><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-urgency-of-now?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/the-urgency-of-now?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p></div><p></p><p>Some examples&#8230;</p><ul><li><p>A client with advanced dementia doesn&#8217;t want to eat and has lost weight. He becomes distressed when aides attempt to force-feed him. A harm reduction approach: Accept that he doesn&#8217;t want to eat, and stop forcing him.</p></li><li><p>A careseeker with advanced cancer has severe pain. Increasing opioid medication could make them drowsier or less interactive. A harm reduction approach: Increase pain medication so that they&#8217;re comfortable and accept periods of sleepiness as preferable to uncontrolled pain.</p></li><li><p>A dad with Parkinson&#8217;s insists on walking independently despite repeated falls. A harm reduction approach: He walks with supervision, using a gait belt or walker.</p></li><li><p>My client with advanced heart failure keeps declining hospitalization even though it might briefly prolong her life. A harm reduction approach: Treat symptoms at home, utilizing hospice or palliative care.</p></li><li><p>Watching a parent or partner, who never created advance directives, lose decision-making capacity. This means a slow, painful decline. A harm reduction approach: Approving a DNR and saying no to blood transfusions or antibiotics, and yes to comfort medications.</p></li></ul><h2>Both/And</h2><p>Harm reduction should never be mistaken for the goal. It&#8217;s a stopgap, and we must spread awareness and advocacy in order to make it less necessary. But treating harm reduction as somehow less legitimate than a culture shift or legislative change helps no one.</p><p>Let&#8217;s push hard for the world that we want, while refusing to abandon people in the world we&#8217;re in. Reducing harm right now makes that possible.</p><h4>Further Reading &amp; Support</h4><ul><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/its-august-get-your-affairs-in-order?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Get Your Affairs in Order</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/the-right-to-try-act-in-principle?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">The &#8220;Right to Try&#8221; Act</a></p></li><li><p><a href="/__u/catherinedurkinrobinson.substack.com/p/a-doulas-guide-to-dementia-care?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">A Doula&#8217;s Guide to Dementia Care</a></p></li></ul>]]></content:encoded></item><item><title><![CDATA[A Stubbornly Persistent Illusion]]></title><description><![CDATA[Time, endings, and the many ways for us to picture what comes next.]]></description><link>https://catherinedurkinrobinson.substack.com/p/a-stubbornly-persistent-illusion</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/a-stubbornly-persistent-illusion</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 03 Aug 2026 11:01:13 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!l759!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Most of us think of time the same way. Like a highway - with a beginning behind us and an end somewhere up ahead. We&#8217;re born at one end and die at the other. Everything in between these bookended, universal experiences goes in one direction.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!l759!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!l759!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!l759!, 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/__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!l759!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg" width="1456" height="971" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/b280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:971,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:4372054,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/209519144?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!l759!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!l759!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!l759!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!l759!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb280a303-cd7d-4def-8567-b9dacfac5168_6000x4000.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>It seems intrinsic, this natural picture of time. The truth that we live every day. We wake up in the morning &#8211; that&#8217;s the beginning of the day &#8211; and go to sleep at the end. A reliable rhythm.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/a-stubbornly-persistent-illusion?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/a-stubbornly-persistent-illusion?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Then I&#8217;ll travel or meet a careseeker from another culture who reminds me that this idea of time is just that. An idea. And it&#8217;s one that not everyone shares. Our American or European-descended idea of time isn&#8217;t the law of the universe. Plenty of people, across plenty of centuries, looked at time and saw something completely different.</p><p>I can&#8217;t help but think about how much this highway or arrow-shaped idea governs the way we talk about dying. We speak of someone &#8220;running out of time,&#8221; or a life &#8220;cut short,&#8221; or the end &#8220;approaching.&#8221; Like we&#8217;re driving a car so&#8230;</p>
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   ]]></content:encoded></item><item><title><![CDATA[It’s August – Get Your Affairs in Order]]></title><description><![CDATA[Continuing our monthly guide for dying well.]]></description><link>https://catherinedurkinrobinson.substack.com/p/its-august-get-your-affairs-in-order</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/its-august-get-your-affairs-in-order</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 30 Jul 2026 11:03:10 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!W0uZ!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>We lose our words and thoughts when a doctor says those five words. Sometimes my clients look at their laps while all I hear is the fluorescent light humming overhead. We glance over at each other and take deep breaths.</p><p>For most people, &#8220;Get your affairs in order&#8221; means there isn&#8217;t much time left, and there are so many things we have to do while we still can. It&#8217;s a phrase doctors use because they can&#8217;t spell out a prognosis in blunt numbers, even though some may try. Nevertheless, this directive leaves most of us feeling lost in a fog, unsure what &#8220;affairs&#8221; or &#8220;in order&#8221; even means.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!W0uZ!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!W0uZ!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!W0uZ!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!W0uZ!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!W0uZ!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!W0uZ!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!W0uZ!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F926e0830-622b-4b98-890d-2bb3fb88feaa_5184x3456.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Who thinks clearly in the moments right after we&#8217;re told that we&#8217;re dying? Or a loved one is terminally ill? Acute stress floods our bodies with adrenaline, mixes in cortisol, and narrows our attention. All this inner chaos disrupts our memories and makes it hard for us to process new information.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/its-august-get-your-affairs-in-order?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/its-august-get-your-affairs-in-order?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><h2>Emotions Go Up, Cognition Goes Down</h2><p>Clients call me looking for answers and understanding. They describe hearing &#8230;</p>
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   ]]></content:encoded></item><item><title><![CDATA[Meeting the Divine Before Death]]></title><description><![CDATA[It's time we reclaim the sacred.]]></description><link>https://catherinedurkinrobinson.substack.com/p/reclaim-the-sacred</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/reclaim-the-sacred</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 27 Jul 2026 11:02:23 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!r8dy!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>Despite what many of us have been taught for the last six thousand years, or so, communion with God, the universe, or the all doesn&#8217;t require a mediator. In many cultures, sacred connection isn&#8217;t a scheduled event for Friday night or Sunday morning. It doesn&#8217;t involve a man telling us his Important Thoughts, always from his Important Point of View, from high atop a raised platform.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!r8dy!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!r8dy!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, 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data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/a6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:971,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:2770658,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/208558744?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!r8dy!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!r8dy!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!r8dy!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!r8dy!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa6c27094-e58e-4973-8c72-1efa2fa37aab_5616x3744.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Nope. Instead, anyone can access their higher power through meditating, fasting, silent retreats&#8230;and more. Some do this by ingesting plants. Plants with very specific molecules. Such ceremonies have been part of our species&#8217; spiritual life for millennia.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/reclaim-the-sacred?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/reclaim-the-sacred?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><h2>Intermediaries - Go Away</h2><p>Long before organized religions or the colonial crimes that spread them across the globe, spiritual practice in most cultures was individual and participatory. Rather than patriarchal or hierarchical.</p><p>And those sacred rituals are still around, despite the imperialists&#8217; best efforts. We just have to look for them.</p><p>In the Amazon basin, ind&#8230;</p>
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   ]]></content:encoded></item><item><title><![CDATA[A Legal Way to Hasten Death]]></title><description><![CDATA[When voluntarily stopping eating and drinking works, and when it doesn&#8217;t.]]></description><link>https://catherinedurkinrobinson.substack.com/p/a-legal-way-to-hasten-death</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/a-legal-way-to-hasten-death</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 23 Jul 2026 11:02:59 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!1vMR!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>My clients who are ill and facing unbearable suffering don&#8217;t have many legal options for a quick death. Those unable to move to states where laws allow medical aid in dying have even fewer options. There are some choices to explore with <a href="/__u/open.substack.com/pub/catherinedurkinrobinson/p/final-exit-network-ethics-and-end?r=py6bb&amp;utm_campaign=post&amp;utm_medium=web">Final Exit Network</a> and a slim few outside the United States. But one legal option, available to everyone, that doesn&#8217;t get nearly enough attention is voluntarily stopping eating and drinking (VSED).</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!1vMR!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!1vMR!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg" width="1456" height="971" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:971,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:5890285,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/208087294?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!1vMR!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F2f4b169d-0511-4ac5-84cc-c25d510b1813_5472x3648.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>VSED is legal for adults of sound mind living in any of the fifty states. According to the Supreme Court decision in Cruzan v. Director, Missouri Department of Health, &#8220;a competent person would have a constitutionally protected right to refuse lifesaving hydration and nutrition.&#8221;</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/a-legal-way-to-hasten-death?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/a-legal-way-to-hasten-death?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Those who choose this option include people:</p><ul><li><p>dealing with a chronic or incurable disease.</p></li><li><p>diagnosed with early-stage dementia.</p></li><li><p>ready to die after having lived long and full lives.</p></li></ul><p>I work with clients who have consulted a physician or hospice for round-the-clock care before choosing VSED,&#8230;</p>
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   ]]></content:encoded></item><item><title><![CDATA[Grief Surrogate]]></title><description><![CDATA[Redirecting the energy loss leaves behind.]]></description><link>https://catherinedurkinrobinson.substack.com/p/the-grief-surrogate</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/the-grief-surrogate</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 20 Jul 2026 11:02:59 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!olzR!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>When you&#8217;re mourning, what do you do with all that love? That grief&#8217;s gotta go somewhere. Here&#8217;s a term to add to your death-literacy vocabulary list: the grief surrogate. Not a stand-in for the dead person, but a stand-in for the <em>relationship itself. </em>A role or practice that gives our remaining love, protectiveness, and energy somewhere to land, now that the person who once received it is gone.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!olzR!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!olzR!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!olzR!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!olzR!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!olzR!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!olzR!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!olzR!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F66aa82c8-04c1-4f30-9b9f-c9279e4022c3_8164x6123.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>This is a different idea from the more familiar &#8220;continuing bonds&#8221; work of talking to photographs or writing unsent letters. A healthy grief surrogate is about taking the leftover current &#8212; that impulse to check in, care for, teach, or protect &#8212; in a different, constructive direction. Before it starts to form into knots of anxiety, restlessness, or numbness.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-grief-surrogate?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/the-grief-surrogate?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Done well, a grief surrogate doesn&#8217;t distract from grief or avoid it. It gives us something meaningful to do with it.</p><h2>The Upside of Redirection</h2><p>Grief is sadness and so much more. It&#8217;s love mixed with attention that once had an outlet and now al&#8230;</p>
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   ]]></content:encoded></item><item><title><![CDATA[Stop Slowly Killing Yourself]]></title><description><![CDATA[The cardiovascular cost of being an asshole.]]></description><link>https://catherinedurkinrobinson.substack.com/p/stop-slowly-killing-yourself</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/stop-slowly-killing-yourself</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 16 Jul 2026 11:03:50 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!0DFY!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>I sit with dying people a lot. Holding hands during quiet days and even quieter nights, and listening carefully to what my clients say when they know, for certain, that time has run out. Here&#8217;s what I know: those who die angry and alone are rarely the ones who were &#8220;too soft&#8221; or &#8220;too woke.&#8221;</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!0DFY!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_1456, 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!0DFY!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fb5d1fed3-6e1d-4010-a1c5-192bcc69c26c_5044x4035.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Those who die in agony and regret are the ones who spent decades armored in contempt.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/stop-slowly-killing-yourself?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/stop-slowly-killing-yourself?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>We talk so much about toxicity as something done to other people. A cruel boss who makes the workplace intolerable. A cutting remark from some random online commenter that leads a writer or reader to self-harm. Pundits who spew hatred out into the world. </p><p>All of that is true, and it&#8217;s only part of the story.</p><p>Toxicity is also something perpetrators do to themselves. Every cortisol spike, severed relationship, or word/act of cruelty accumulates in the body. Similar to the way secondhand smoke accumulates in the lungs of a partner or children. Except in this case, the spewer is the smoker.</p><h2>My Definition of Toxicity</h2><p>It&#8217;s OK&#8230;</p>
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   ]]></content:encoded></item><item><title><![CDATA[A Doula's Guide to Dementia Care]]></title><description><![CDATA[Practical wisdom for caregivers navigating dementia, from diagnosis to end of life.]]></description><link>https://catherinedurkinrobinson.substack.com/p/a-doulas-guide-to-dementia-care</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/a-doulas-guide-to-dementia-care</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 13 Jul 2026 11:01:19 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!xhK2!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>According to the <a href="https://www.cdc.gov/aging/dementia/index.html">CDC</a>, dementia isn&#8217;t a specific disease. It&#8217;s a general term for a diminished ability to think, remember, or make decisions. Dementia interferes with everyday activities. More and more aging adults are being diagnosed every year.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!xhK2!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!xhK2!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg" width="1456" height="951" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/feb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:951,&quot;width&quot;:1456,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:1719780,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/206691195?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!xhK2!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Ffeb9d357-ef07-493a-9330-cf6deaa81681_4199x2743.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>Of those at least 65 years of age, there were an estimated 5 million adults with dementia in 2014 and projected to be nearly 14 million by 2060. Currently, 6.2 million people are living with Alzheimer&#8217;s Disease.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/a-doulas-guide-to-dementia-care?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/a-doulas-guide-to-dementia-care?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Adults with dementia need caregivers. More than one caregiver is necessary for those who require round-the-clock supervision. As they get closer to the end of their lives, family members, friends, healthcare workers, and death doulas must work together as a team.</p><p>This includes quality training and awareness so our loved ones get the loving care they require. </p><h2>Consider Your Options</h2><p>How do you want to be cared for if you get some form of dementia? Consider your options before a diagnosis. This includes choosing a healthcare proxy, who will ma&#8230;</p>
      <p>
          <a href="/__u/catherinedurkinrobinson.substack.com/p/a-doulas-guide-to-dementia-care">
              Read more
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   ]]></content:encoded></item><item><title><![CDATA[More Fun Summer Reading]]></title><description><![CDATA[A girl can dream...]]></description><link>https://catherinedurkinrobinson.substack.com/p/more-fun-summer-reading</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/more-fun-summer-reading</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Sun, 12 Jul 2026 16:09:59 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!BItL!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>My latest story is about a global pandemic and what a mass-death event reveals about power. Cause it&#8217;s good therapy for a death doula to imagine reorganizing a world where its survivors reckon with what they&#8217;d been calling normal. </p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!BItL!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!BItL!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg" width="1001" height="1266" data-attrs="{&quot;src&quot;:&quot;https://substack-post-media.s3.amazonaws.com/public/images/935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg&quot;,&quot;srcNoWatermark&quot;:null,&quot;fullscreen&quot;:null,&quot;imageSize&quot;:null,&quot;height&quot;:1266,&quot;width&quot;:1001,&quot;resizeWidth&quot;:null,&quot;bytes&quot;:256246,&quot;alt&quot;:null,&quot;title&quot;:null,&quot;type&quot;:&quot;image/jpeg&quot;,&quot;href&quot;:null,&quot;belowTheFold&quot;:false,&quot;topImage&quot;:true,&quot;internalRedirect&quot;:&quot;https://catherinedurkinrobinson.substack.com/i/206713723?img=https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg&quot;,&quot;isProcessing&quot;:false,&quot;align&quot;:null,&quot;offset&quot;:false}" class="sizing-normal" alt="" srcset="/__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!BItL!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F935a02ea-d047-465f-9ce5-a0005400adc3_1001x1266.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p><em>The Medicine</em> tells its story through archival fragments, congressional transcripts, and a future archivist cataloguing artifacts nobody wants to look at directly. </p><p>For thousands of years, we&#8217;ve erased matriarchal societies and their lessons. We&#8217;ve rewarded and prioritized war-making and violence from afar. What would it take to reverse that trajectory? Not all apocalypse stories are sad. I&#8217;m considering a utopian future for the world. And what it might take to get there.</p><p><a href="https://worldinsanelitmag.wixsite.com/online/readissue4">I hope you&#8217;ll click here to give it a read</a>!</p>]]></content:encoded></item><item><title><![CDATA[About That Night]]></title><description><![CDATA["Katie's Way Out" Part 2]]></description><link>https://catherinedurkinrobinson.substack.com/p/about-that-night</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/about-that-night</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Fri, 10 Jul 2026 11:01:36 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!Ta2b!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>A group of friends, several decades after high school, gather in a Tampa restaurant, waiting to hear whether the governor will finally sign the death warrant for the man who murdered their friend in 1986.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!Ta2b!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!Ta2b!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!Ta2b!, 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/__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!Ta2b!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg" width="1012" height="1074" 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!Ta2b!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!Ta2b!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!Ta2b!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F5d889c73-3779-4ce1-a4fc-b61bbe98935e_1012x1074.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>My latest short story, <em>Promises</em> (based on real events), has been published by Be About It Press. I hope you&#8217;ll give it a read!</p><p>It&#8217;s about what unfolds in the strange choreography of grief thirty years on: friends who show up and the ones who can&#8217;t, reporters circling for a quote, and the uneasy space between ideals and reality. A death-penalty-skeptical activist who&#8217;s spent months lobbying for this exact outcome has to sit with that contradiction in real time, in a red dress, in front of cameras, surrounded by people who knew her before any of this occurred.</p><p>Woven through the reunion is a decades-long, unconventional relationship. But <em>Promises</em> is also a story about how death &#8212; sudden, delayed, anticipated, or simply threaded through a life in small ways &#8212; reshapes the people left behind. The sometimes unlovely ways we metabolize loss: through old songs, old jokes, old grudges, and the people we keep choosing to come back to.</p><p><a href="/__u/open.substack.com/pub/beaboutitpress/p/promises?r=py6bb&amp;utm_campaign=post-expanded-share&amp;utm_medium=post%20viewer">Click here to read it</a>.</p>]]></content:encoded></item><item><title><![CDATA[Your Bucket List is a Compass]]></title><description><![CDATA[The most meaningful list is the one no one else could put together.]]></description><link>https://catherinedurkinrobinson.substack.com/p/your-bucket-list-is-a-compass</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/your-bucket-list-is-a-compass</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Thu, 09 Jul 2026 11:03:08 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!AH2U!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>For some folks, creating a bucket list comes with a lot of pressure. They prioritize activities like skydiving or going to see the Northern Lights. Machu Picchu. A photo at the Trevi Fountain, coin mid-toss. These aren&#8217;t bad goals &#8212; but when everyone&#8217;s list looks the same, it&#8217;s worth asking whether we&#8217;re chasing our own dreams or someone else&#8217;s TikTok reel.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!AH2U!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 1456w" sizes="100vw"><img src="/__u/substackcdn.com/image/fetch/$s_!AH2U!,w_1456,c_limit,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg" width="1456" height="971" 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/__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 424w, /__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_848, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 848w, /__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_1272, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!AH2U!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fa2627e81-91a1-4b8f-a06e-8053c46ebfd1_5184x3456.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>The best bucket lists I&#8217;ve seen aren&#8217;t scavenger hunts for impressive experiences. I encourage my clients to create something that tells me who they are and who they want to become before they die. Here&#8217;s how we build a list that actually holds up under our own scrutiny.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/your-bucket-list-is-a-compass?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/your-bucket-list-is-a-compass?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><h2>Start by Subtracting</h2><p>Most people build their list by brainstorming things that sound exciting. Try the opposite first: write down everything currently on your list, then cross out anything you added because it seemed like the kind of thing a person &#8220;should&#8221; want.</p><p>This isn&#8217;t about your kids, partners, or followers online.</p><p>I also gently encourage my clients to be honest w&#8230;</p>
      <p>
          <a href="/__u/catherinedurkinrobinson.substack.com/p/your-bucket-list-is-a-compass">
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   ]]></content:encoded></item><item><title><![CDATA[The Joy of Keeping Company]]></title><description><![CDATA[What dying teaches me about shared happiness.]]></description><link>https://catherinedurkinrobinson.substack.com/p/the-joy-of-keeping-company</link><guid isPermaLink="false">https://catherinedurkinrobinson.substack.com/p/the-joy-of-keeping-company</guid><dc:creator><![CDATA[Catherine Durkin Robinson]]></dc:creator><pubDate>Mon, 06 Jul 2026 11:01:40 GMT</pubDate><enclosure url="https://substackcdn.com/image/fetch/$s_!s1_q!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbc40cd06-9c77-4dc1-b6be-a7ac296770fd_3800x2138.jpeg" length="0" type="image/jpeg"/><content:encoded><![CDATA[<p>I had a client &#8212; let&#8217;s call her Ruth &#8212; and in the last few weeks of her life, Ruth&#8217;s daughter had brought in an old photo album. One afternoon, the two of them laughed for hours over pictures and memories. Ruth&#8217;s oxygen levels that day, her nurse told me, were better than they&#8217;d been in weeks.</p><p>That&#8217;s the kind of moment that death work teaches me to stay alert to - not just how someone dies, but how they keep living, and with whom.</p><div class="captioned-image-container"><figure><a class="image-link image2 is-viewable-img" target="_blank" href="/__u/substackcdn.com/image/fetch/$s_!s1_q!,f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbc40cd06-9c77-4dc1-b6be-a7ac296770fd_3800x2138.jpeg" data-component-name="Image2ToDOM"><div class="image2-inset"><picture><source type="image/webp" srcset="/__u/substackcdn.com/image/fetch/$s_!s1_q!, /__u/catherinedurkinrobinson.substack.com/w_424, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_webp, /__u/catherinedurkinrobinson.substack.com/q_auto:good, 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/__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbc40cd06-9c77-4dc1-b6be-a7ac296770fd_3800x2138.jpeg 1272w, /__u/substackcdn.com/image/fetch/$s_!s1_q!, /__u/catherinedurkinrobinson.substack.com/w_1456, /__u/catherinedurkinrobinson.substack.com/c_limit, /__u/catherinedurkinrobinson.substack.com/f_auto, /__u/catherinedurkinrobinson.substack.com/q_auto:good, /__u/catherinedurkinrobinson.substack.com/fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2Fbc40cd06-9c77-4dc1-b6be-a7ac296770fd_3800x2138.jpeg 1456w" sizes="100vw" fetchpriority="high"></picture><div class="image-link-expand"><div class="pencraft pc-display-flex pc-gap-8 pc-reset"><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container restack-image"><svg aria-hidden="true" width="20" height="20" viewBox="0 0 20 20" fill="none" stroke-width="1.5" stroke="var(--color-fg-primary)" stroke-linecap="round" stroke-linejoin="round" xmlns="http://www.w3.org/2000/svg"><g><path d="M2.53001 7.81595C3.49179 4.73911 6.43281 2.5 9.91173 2.5C13.1684 2.5 15.9537 4.46214 17.0852 7.23684L17.6179 8.67647M17.6179 8.67647L18.5002 4.26471M17.6179 8.67647L13.6473 6.91176M17.4995 12.1841C16.5378 15.2609 13.5967 17.5 10.1178 17.5C6.86118 17.5 4.07589 15.5379 2.94432 12.7632L2.41165 11.3235M2.41165 11.3235L1.5293 15.7353M2.41165 11.3235L6.38224 13.0882"></path></g></svg></button><button tabindex="0" type="button" class="pencraft pc-reset pencraft icon-container view-image"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" viewBox="0 0 24 24" fill="none" stroke="currentColor" stroke-width="2" stroke-linecap="round" stroke-linejoin="round" class="lucide lucide-maximize2 lucide-maximize-2"><polyline points="15 3 21 3 21 9"></polyline><polyline points="9 21 3 21 3 15"></polyline><line x1="21" x2="14" y1="3" y2="10"></line><line x1="3" x2="10" y1="21" y2="14"></line></svg></button></div></div></div></a></figure></div><p>As a death doula, a lot of what I do stays in the sorrowful or practical realm: legacy conversations, advance directives, vigil planning, grief support. But in the best deaths, there are moments of joy. And I&#8217;ve noticed a difference between the happiness clients experience by themselves and the happiness they experience with others.</p><p></p><p class="button-wrapper" data-attrs="{&quot;url&quot;:&quot;https://catherinedurkinrobinson.substack.com/p/the-joy-of-keeping-company?utm_source=substack&utm_medium=email&utm_content=share&action=share&quot;,&quot;text&quot;:&quot;Share&quot;,&quot;action&quot;:null,&quot;class&quot;:null}" data-component-name="ButtonCreateButton"><a class="button primary" href="/__u/catherinedurkinrobinson.substack.com/p/the-joy-of-keeping-company?utm_source=substack&amp;utm_medium=email&amp;utm_content=share&amp;action=share"><span>Share</span></a></p><p></p><p>Research suggests that there are differences between them. And joyful togetherness is one of the more meaningful experiences we can have at the end of our lives.</p><h2>Positivity Resonance</h2><p>Barbara Fredrickson, a noted professor of psycholog&#8230;</p>
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